Deciding on cystic fibrosis carrier screening: three citizens’ juries and an online survey
نویسندگان
چکیده
منابع مشابه
Cystic fibrosis carrier screening.
Carrier screening for cystic fibrosis (CF) has been available since the early 1990s, yet there are few programs, and none funded as part of a national health care strategy. The aim of this paper is to provide a description of carrier screening for CF and examine the progress that has been made towards the establishment of universal population-based carrier screening programs. This is an evidenc...
متن کاملCystic fibrosis: to screen or not to screen? Involving a Citizens' jury in decisions on screening carrier
CONTEXT In recent years, the continuous improvements in molecular biology techniques have made it possible to detect carriers for several genetic conditions, including cystic fibrosis (CF). In some countries, CF carrier screening is offered to increasing subset of the general population. Offering of carrier screening at a population level should not be decided by local health authorities only, ...
متن کاملCarrier screening for cystic fibrosis: costs and clinical outcomes.
OBJECTIVES To evaluate the costs and clinical effects of 16 alternative strategies for cystic fibrosis (CF) carrier screening in the reproductive setting; and to test the sensitivity of the results to assumptions about cost and detection rate, stakeholder perspective, DNA test specificity, chance of nonpaternity, and couples' reproductive plans. METHOD Cost-effectiveness analysis. RESULTS A...
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Survey techniques such as contingent valuation have been used extensively by environmental economists to develop an understanding of consumer preferences for environmental goods. On the basis of such techniques, recommendations have been formulated in relation to environmental policy. However, the exposure of weaknesses in this method has led economists to look to other informationgathering app...
متن کاملImplications of carrier identification in newborn screening for cystic fibrosis.
OBJECTIVE To investigate the psychosocial implications for families whose infant was identified as a cystic fibrosis carrier by newborn screening. DESIGN Prospective psychosocial assessment. SETTING Primary care. RESPONDENTS STUDY (a) families of an affected infant identified by screening (n = 9); (b) families of a carrier infant identified by screening (n = 10). CONTROL group of mot...
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ژورنال
عنوان ژورنال: European Journal of Public Health
سال: 2018
ISSN: 1101-1262,1464-360X
DOI: 10.1093/eurpub/cky032